Exploring Caregiver Grief A Glaserian (Classic) Grounded Theory Protocol
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Abstract
Preparing a research protocol using Glaserian (classic) grounded theory (GT) is often challenging for novice researchers due to aspects of the methodology deviating from more familiar quantitative research and also from some aspects of other qualitative methods. Yet, universities and ethics review boards often expect certain information to be presented for the researcher to receive approval to begin data collection. This article provides an example of a Glaserian (classic) GT protocol approved by an ethics review board. The exemplar explains how Glaserian (classic) GT will be used to formulate a theory about the primary concerns and behaviors of spousal caregivers who have lost their partners to Parkinson's disease. In-depth interviews of bereaved spousal caregivers will be analyzed using constant comparative method to identify the participants' main concern and the behaviors used to address it. The unique nature of Glaserian (classic) GT necessitates navigating institutional requirements by providing the required information with the protocol while also educating the reader about GT.
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References
Bhosale, V. (2022). Enago Academy. Retrieved from https://www.enago.com/academy/research-protocol-elements-to-consider/
Carter, J., Lyons, K. L., & Malcom, J. (2012). Pre-death grief in Parkinson's caregivers: A pilot survey-based study. Parkinsonism Related Disorders. doi:10.1016/j.parkreldis.2012.06.015
Chamestzky, B. (2022). Coding in classic grounded theory: I've done an interview; Now what? Grounded Theory Review An International Journal, 21(2). Retrieved from https://groundedtheoryreview.com/2023/06/22/developing-a-classic-grounded-theory-research-study-protocol-a-primer-for-doctoral-students-and-novice-researchers/
Chun Tie, Y., Birks, M., & Francis, K. (2019). Grounded theory research: A design framework for novice researchers. SAGE Open Medicine. Retrieved from https://www.ncbi.nlm.nih.gov/pubmed/30637106
Garner, J. (1997). Dementia: An intimate death. British Journal of Medical Psychology, 70(2), 177-184. doi:10.1111/j.2044-8341.1997.tb01897.x
Glaser. (1978). Theoretical sensitivity: Advances in the methodology of grounded theory. Sociology Press.
Glaser, B. (1998). Doing grounded theory: Issues and discussions (Vol. 1). Sociology Press.
Holton, J., & Walsh, I. (2017). Classic grounded theory: Applications with qualitative and quantitative data. SAGE. doi:https://doi.org/10.4135/9781071802762
Howard, C. (2019). The prospectus, proposal and the dissertation. Retrieved from https://craigdennishoward.wordpress.com/2019/01/18/what-they-told-you-is-wrong-the-prospectus-proposal-and-the-dissertation/
Makram, A., Elsheikh, R., Makram, O., Thanh Van, N., Nam, N., quan, N., . . . Hyuy, N. (2024). Tips from an expert panel on the development of a clinical research protocol. BMC Medical Research Methodology, 24(293). doi:https://doi.org/10.1186/s12874-024-02315-1
Mora-Lopez, G., Berenguer-Poblet, M., Berbis-Morello, C., Albacar-Rioboo, C., Monteso-Curto, P., Aguaron-Garcia, M., & Ferre-Grau, C. (2022). New life transitions of former caregivers: Positive mental health approach. Frontiers in Psychology, 13. doi:10.3389/fpsyg.2022.854108
Nielsen, M., Neergaard, m., Jensen, A., Bro, F., & Guldin, M. (2016). Do we need to change our understanding of anticipatory grief in caregivers? A systematic review of caregiver studies during end-of-life caregiving and bereavement. Clinical Psychology Review, 44, 75-93. doi:10.1016/j.cpr.2016.01.002
Rigby, T., Johnson, D., Taylor, A., & Galvin, J. (2021). Comparison of the caregiving experience of grief, burden, and quality of life in dementia with Lewy bodies, Alzheimer's disease, and Parkinson's disease dementia. Journal of Alzheimer's Disease, 80(1), 421-432. doi:10.3233/JAD-201326
Simmons. (2022). Experiencing grounded theory: A comprehensive guide to learning, doing, mentoring, teaching, and applying grounded theory. Brown Walker Press.
Simmons, O., & Gregory, T. (2003). Grounded action. Achieving optimal and sustainable change. Forum Qualitative Sozialforschung / Forum: Qualitative Social Research, 4(3).
Vander Linden, K., & Palmieri, P. (2023). Developing a classic grounded theory research study protocol: A primer for doctoral students and novice researchers. Grounded Theory Review An International Journal, 22(1). Retrieved from https://groundedtheoryreview.com/2023/06/22/developing-a-classic-grounded-theory-research-study-protocol-a-primer-for-doctoral-students-and-novice-researchers/
White, D., & Palmieri, P. (2024). There is ‘no cure for caregiving: The experience of women caring for husbands living with Parkinson’s disease. International Journal of Qualitative Studies on Health and Well-being, 19(1). doi:10.1080/17482631.2024.2341989