Emerging From Grief The Theory of Care Realignment
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Abstract
Care Realignment is a theory that conceptualizes how former spousal caregivers with PD resolve their main concern of redefining life and self, following the death of their partner. Using Glaserian classic grounded theory methodology, interviews with widowed caregivers were coded and analyzed through constant comparison and memoing to generate a theory. The theory of Care Realignment identifies three phases — Experiencing Loss, Reorienting, and Rebuilding — and explains how caregivers resolve their main concerns about redefining life and self after the end of caregiving. Grieving expresses the initial destabilization and withdrawal caregivers face in the dual loss of spouse and caregiving role. Reorienting depicts the effort to reestablish meaning and connection through reflection, faith, and dialogue. Rebuilding conveys the reconstruction of stability and identity through self-care, reciprocity, and renewed purpose. Movement across these phases is neither linear nor uniform; rather, it represents a cyclical process of adapting, integrating, and transforming loss into continuity. Care Realignment reframes bereavement as an adaptive process of identity reconstruction rather than recovery from pathology. It contributes to grief literature by extending existing models to include the post-caregiving transition and by offering a theory to support widowed caregivers as they integrate caregiving, loss, and self-renewal into a continuing life narrative.
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References
American Psychiatric Association. (2022). Diagnostic and statistical manual of mental disorders (5th ed., text rev.). https://doi.org/10.1176/appi.books.9780890425787
Ayousuf-Abramson, S. (2020). Worden's tasks of mourning through a social work lens. Journal of Social Work Practice, 35(4), 367–379. https://doi.org/10.1080/02650533.2020.1843146
Cummings, K. (2010). Coming to grips with loss: A grounded theory study [Doctoral dissertation, Fielding Graduate University]. ProQuest Dissertations and Theses Global.
Freud, S. (1957). Mourning and melancholia. In J. Strachey (Ed. & Trans.), The standard edition of the complete psychological works of Sigmund Freud (Vol. 14, pp. 237–258). Hogarth Press. (Original work published 1917)
Garner, J. (1997). Dementia: An intimate death. British Journal of Medical Psychology, 70(2), 177–184. https://doi.org/10.1111/j.2044-8341.1997.tb01897.x
Glaser, B. G. (1998). Doing grounded theory: Issues and discussions. Sociology Press.
Kübler-Ross, E. (1973). On death and dying. Routledge. https://doi.org/10.4324/9780203010495
Mora-Lopez, G., Berenguer-Poblet, M., Berbis-Morello, C., Albacar-Rioboo, N., Monteso-Curto, P., Aguaron-Garcia, M. J., & Ferre-Grau, C. (2022). New life transition of former caregivers: Positive mental health approach. Frontiers in Psychology, 13, Article 854108. https://doi.org/10.3389/fpsyg.2022.854108
Neimeyer, R. A. (Ed.). (2001). Meaning reconstruction & the experience of loss. American Psychological Association.
Pérez-González, A., Vilajoana-Celaya, J., & Guardia-Olmos, J. (2024). Burden and anticipatory grief in caregivers of family members with Alzheimer's disease and other dementias. Palliative and Supportive Care, 22(5), 1158–1168. https://doi.org/10.1017/S1478951523001360
Rigby, T., Johnson, D. K., Taylor, A., & Galvin, J. E. (2021). Comparison of the caregiving experience of grief, burden, and quality of life in dementia with Lewy bodies, Alzheimer's disease, and Parkinson's disease dementia. Journal of Alzheimer's Disease, 80(1), 421–432. https://doi.org/10.3233/JAD-201326
Simmons, O. E. (2022). Experiencing grounded theory: A comprehensive guide to learning, doing, mentoring, teaching, and applying grounded theory. BrownWalker Press.
Stroebe, M., & Schut, H. (1999). The dual process model of coping with bereavement: Rationale and description. Death Studies, 23(3), 197–224. https://doi.org/10.1080/074811899201046
White, D. R., & Palmieri, P. A. (2024). There is ‘no cure for caregiving’: The experience of women caring for husbands living with Parkinson’s disease. International Journal of Qualitative Studies on Health and Well-being, 19(1), Article 2341989. https://doi.org/10.1080/17482631.2024.2341989